Tyler had a great day today! Just upon walking into his room you could tell
a huge difference. His face looks SO GOOD! The swelling has greatly reduced;
his blackened eye that he had surgery on is even looking great!
His
white blood cell count is starting to drop and his fever is slightly reduced. We went to the hospital in attempt to cheer
up Tyler but instead we all walked away feeling like Tyler had brightened our
day. He was talking in a British accent
today because ‘pretending helps take away some of the pain’. He was absolutely hilarious talking about
crumpets and tea… not liking mushrooms, chocolate being good on the palate and
telling us hilarious stories. John
recorded some of it and we laughed all over again. For dinner he had a few bites of cheesecake, a
small amount of broth and a little bit of hot chocolate. They are starting to reduce the amount of
food going through his feeding tube to encourage eating.
John’s birthday is today, so when he walked in, Tyler
started singing Happy Birthday and raised his arms to give his Dad a hug. They sure love each other. He has therapy twice a day now as they work
with his legs and arms. He sits at the
edge of the bed as they work on range of motion and limited resistance training. He is worn out and nauseous after
therapy, mostly from sitting straight up. He said his hands and teeth
were really hurting today as well.
Tyler will forever have an increased capacity for
compassion. He will know frustration, immense
pain, loneliness and helplessness. On
the other hand he will know success, health, companionship and hope. “Here then is a great truth. In the pain, the
agony, and the heroic endeavors of life, we pass through a refiners fire, and
the insignificant and the unimportant in our lives can melt away like the dross
and make our faith bright, intact, and strong” – James E Faust.
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