Tyler’s fever was up again today, but nurses say that is to
be expected. Occupational therapists are
already starting to work on making his body move... well at least his fingers.
He had a PICC line put in today in his right arm, that procedure took a long
time. His left arm has been hard casted. On a happy note, Tyler got one of his chest tubes
out! I asked about his pain level today,
the nurse said she asked a couple times and he was comfortable.
He is much more awake and still trying to communicate. He tried to nudge at his mom’s phone and then
on my phone wanting to spell on it, but he doesn't have the ability to point to
such small numbers on the screen yet.
The nurse gave us a clipboard with the alphabet on it. It worked better, but it really wore him out
to spell a couple of words. You can see
frustration in his eyes as he tries to tell us the simplest of needs, it is so
humbling.
His face is so swollen today, but he is still so handsome. He looks peaceful when he is sleeping. Watching him sleep brings memories of him as
a toddler running across the horse corral to visit. His little legs carrying him as fast as they
can with the biggest grin on his face. His smile hasn't changed since then – it still
lights up a room. There is nothing like
a genuine ‘Tyler smile’.
My Gratitude Journal fills up quickly when I watch Tyler for
the shortest amount of time. I am
grateful for breathing; swallowing; a moist mouth; eating; seeing; walking;
talking; moving my feet; turning my head; showering; being free from pain. We are most grateful that Tyler is still with
us. We are grateful for the wonderful nurses and
doctors that care for Tyler. We are grateful for the angels that surround him and pray for him continuously. We are grateful for a loving Heavenly Father that sees Tyler and knows him.
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